Locomotor a waste of time?

Maybe I’ve been paralyzed too long, but there are a bunch of new therapy programs out there that I question.

Let me preemptively say that locomotor training has a lot of great benefits (it’s good for weight-bearing, making your muscles move, organ-hanging party time).  It’s a pretty intense therapy where they strap you into a harness (that’s attached to a bar above your head) and hang you above a treadmill. Read this entry

SCI Superstar: Jesse Billauer

The ocean can be a dangerous place. Sharks, big waves with multiple personalities, fugly Man o’ Wars, but you don’t have to tell Jesse Billauer this. He’s a born and bred Cali boy who came out of the womb with a surfboard attached to the hip.

Jesse, at 17, was living the semi-charmed life of a California teenager – young, athletic, gorgeous (still is) and staged to be one of the next big surfers; it was an idyllic life. But his world turned upside down in 1996 when the crest of a wave threw him off his surfboard.

Jesse hit his head on a sandbar and became a C5-6 quadriplegic on impact. Despite a severed spinal cord, which can be a tough SCI blow to receive, Jesse wasn’t about to say adios to a rock star life. If anything, his energy for life has only become more pronounced. Read the rest of this entry

A spoon, a girl and a cell phone

Long ago when I was a newbie in rehab, they sent me home with a reacher as my designated method for picking up stuff on the floor, and then life happened.

Sans-reacher, you have to use a lot of crazy stuff – a broom, a stick, a grocery bag, even a big saggy purse – to pick up stuff from the floor (people with disabilities are ninjas of creative solutions when they have to be).

And in this video by Annemarie Hopkins, a wonderful woman who founded 3eLove.com (and sadly passed away in ’09), proved you can do a lot more with a kitchen spoon than just stir tomato soup. Read this entry

Push Girls Episode 1 Review: Everyone Stares

Oooh baby. I woke up this morning thinking I had nothing to look forward to except an ultrasound and a day of writing ahead of me, but then I saw the first episode of Push Girls dropped a week early. Post-Memorial Day weekend blues cured.

SPOILERS AHEAD ***

The first episode is titled “Everyone Stares,” which couldn’t be a better name for the first episode (that’s one of the first things you’ll notice when you use a wheelchair – everybody stares).

And as the 12 minute preview (released last month) of the series gave me hope for, the first episode hit every note – the reality of dating in a wheelchair, health issues (that can come up at the worst times), and grief…dealing with the loss of mobility, which even the bling and fancy cars can’t fix.

I think one of the things a lot of people with disabilities were worried about when they first heard about the show was that it wouldn’t portray the reality of life in a wheelchair; that the girls might too pretty, too rich, that they had above average support from family and friends (or all of the above), and so they were not going to support it; but from what I saw in episode one however was a very accurate portrayal. Their lives are not rainbows and sunshine bubbles. 

SCI Superstar of the Week: Mark Zupan

The original tattooed hardcore wheelchair athlete, Mark Zupan is the King of “Muderball,” aka quad rugby, the crazy wheelchair flipping sport (you only wish you were as cool as this Austin, Texas dude).

He has the sexiest tattoos ever, more confidence than any guy should legally have….what’s not to love about this guy? Love him! Read this entry

Sticky grip…I think I love you

They say that duct tape is the catchall product everyone should have in their junk drawer, but if you have a disability – hear me loud and clear when I say that sticky grip will transform your life, because it absolutely 100% will. Read this entry

My favorite use so far that I’ve seen online that has inspired me? Sticky grip under makeup compacts. Brilliant! Check out this woman’s awesome blog about life after a stroke, plus learn other cool one-handed makeup tips.