Some People Just Can’t Handle It

And you know what? That’s ok. I’m not here to judge.

Living with paralysis is probably one of the hardest things any human being can endure. So if Daniel James, a British rugby player, wanted to commit suicide because he couldn’t deal with it, it’s totally his perogitive.

Last week this entire story came to light. It made (and still makes) my heart break. I’m not sad because he commited suicide. I’m not even sad because he felt hopeless. I’m sad because he was in this situation in the first place. Why hasn’t a cure for paralysis been found yet?? If we can put rovers on Mars, put men on the Moon, and clone sheep, why in the FUCK can’t we heal tiny areas of spinal cords that have been torn, nicked, or bruised?

I honor the memory of Daniel James. I know his pain all too well. This life never gets easier. It all boils down to how much you want to live, and what makes life for YOU worth living.

Question of the day: How much do you love life?

For me, family, friends, love, good food, music, movies, traveling and seeing the world (even from a wheelchair) make my life worthwhile. I’m not ready to call it quits, but then again I wasn’t a hugely talented rugby player on the brink of hitting the big time before my injury. That’s a lot to lose.

RIP Daniel James. I honestly don’t blame you.

– Tiff

Visit ChinaTown ASAP!

It’s no secret I enjoy being a girl. I relish in it, in fact. And my peoples (omg how I adore this site) ChinaTowner is seriously the best place online to buy a super sexy dress for INCREDIBLY cheap. I am in love with this site so much that just visiting it and browsing it puts me in a better mood. The dress pictured on the left, for example, is only $33 (approx).

They’re designs are just freakin’ fabulous….fierce even, dope!

And you know, with the holiday season right around the corner (sort of, but it will be here sooner than you think), I can’t think of a better site to buy the perfect holiday dress.

And remember, if you sit 24/7 empire waists, longer hems (short dresses just won’t work unless you don’t care if you have an “Oopsies!” Britney Spears moment), and anything that accentuates the shoulders, bust, and neck are your best bet.

You simply must take into account that clothes, ie dresses, WILL look different in a sitting position.

Make it work!

– Tiff

Don’t Choke Yourself Now

If you think you’re just seeing things, and think that everyone (including guys) are wearing neck scarves, well you’re not seeing things. They’re a trend on steroids right now. The scarf can be print or solid, and it’s usually made out of a longer, more dense piece of cotton.

Naturally, Target has them by the dozen, and they’re all fantabulous.

– Tiff

PS. Scarves = the easiest accessory for wc-users.

Hello Future, Come Right In and Have Some Coffee!

The long-awaited “Get yo ass outta that chair, and walk, bitch!” robot suit, that people have been anticipating for years, has finally arrived. I present to you, ReWalk’s Exoskeleton Suit:

Kablam!

– Tiff

Note: Although this design will only work for paras who have trunk control, it’s still incredible to see in action.

A Wheelchair Secret Exposed

Ok, maybe it’s not a “top secret” kind of secret, or purposely hidden for that matter, but it’s definitely not a well known thing…

What in the hell am I talking about? The BEST way to charge your chair, that’s what. How long have you been using a powerchair (me? 15 yrs)? And even though I work in the disability industry, I just found out 3 WEEKS ago that your chair will get an immensely better charge if you leave the joystick on.

That’s right folks, those twinkling lights can double as a nightlight.

And your welcome! I know I just made your Saturday. Actually, thank Andy at Reliable Medical. I love it when my wheelchair fix-it dude actually knows what in the hell he’s doing.

– Tiff

The Perfect Quote for This Blog

I’m not really a big “quote” person. They can be tired, trite, and well I’ll just say it – lame.

But! (but, but, but), I just discovered a phenomenal quote thanks to a mass email sent to us freelancers from my editor. It encompasses my entire life post-injury, what I strive to do everyday, and most importantly – what I hope to further through my articles, podcasts, and blogs. The quote comes from the recently passed disability rights activist and lawyer, Harriet McBryde Johnson.

“Living our lives openly and without shame is a revolutionary act.”

This is one of the most perfectly worded expressions I’ve ever read. What I do, and what I want women with disabilities to do everywhere, is to live their lives as if they weren’t disabled; to NOT let society’s expectations of who they *should* be to mold their lives.

Some people just can’t handle it when we’re “out in the public eye” being sexual beings, getting married, having babies, looking hawt (omgz the horror!), and basically relishing the woman inside of us. They think our disability should somehow make us not want to or not be able to do these things anymore. But, we live in the 21st century. The time for a revolution has come! We are the last minority to get treated equally in regards to the whole “Hey, we’re human too!” situation, and that needs to change.

When will the time come when people no longer come up to me and congragulate me for being out when I’m buying a burrito at Chipotle? When will they stop patronizing me/being shocked for living my life like a “normal” 28 year old? Just because I’m sitting down does not make me that vastly different, nor does it somehow magically siphon away my hormones.

I should really get this quote tattooed across my face. I’d probably piss people off, and that’d be awesome.

– Tiff

Body of War

Tomas Young is 28 years old, sexy, well-spoken, from Kansas City, MO, and unfortunately, a T4 paraplegic. 

In 2003, he was shot and paralyzed by enemy fire (“Instantly dropping my AK 47,” he describes, after getting shot) after only 5 days in Iraq. Body of War is an amazing documentary that EVERYONE should see. Co-directed by the legendary Phil Donahue and Ellen Spiro, this film premiered at the SXSW Film Festival in March and is currently touring the country.

To learn more about this anti-war film, visit the it’s site, BodyofWar.com. Make sure to watch the trailer and to peruse it’s screening schedule; it may be coming to a city near you. I’m hoping that SOON it’ll be available on Netflix (I have the 3-disc unlimited plan), and I REALLY need to see this film in it’s entirety, instead of through dozens of various YouTube clips.

I almost had the opportunity to see it the first weekend of June here in Minneapolis at the National Free Press Conference, but due to PCA scheduling issues and my own damn fault, I couldn’t see the screening (or go to the awesome Q&A session afterwards with Phil Donahue). I’m still kicking myself over that.

ANYWAYS, Eddie Vedder (lead singer of Pearl Jam) wrote/performed a song for the film called, “No More.” It’s beautiful, poignant, and it makes me very happy to see such a high-profile musician affiliated with such an important film.

But yes, this film is great. It shows how brutal life with a SCI really is, how the VA has let Tomas down in re: to proper benefits to fully rehabilitate a paraplegic. and more importantly, how Iraq was a terrible mistake.

– Tiff

Britain’s Missing Top Model

Stylish, sassy, chic … disabled?

Britain is airing a brand new model search reality show in July, specifically looking for models with disabilities. On a awful creative note, it’ll be called Britain’s Missing Top Model. They get no w00t from me for that lame show name.

Here’s the show’s tagline:

Eight young disabled women discover what it takes to be a model – but which of them will win a photo shoot and appear in a top fashion magazine?

Is this a marketing ploy? Is it a serious competition? My Brit friends will have to share their opinion with me after it airs, because unfortunately it’s damn near impossible to get BBC Three in Minnesota, unless you’e Stanley Hubbard.

Oh, and there’s one American on the show too. Her name is Jenny and she’s 22!

– Tiff

PS. I do give the show props for shedding light on the disparity of able-bodied vs. disabled models in the media though. Ok, that deserves a w00t…..”w00t.”