Why You Should Check Out “Little Britain”

Andy = The dumbass in the wheelchair.

Lou = The dumbass PCA.

It’s a lot like Dumb and Dumber (as in “the blind leading the blind”), but the kicker? Andy can really walk and Lou is too dense to figure it out. Ha.

It’s classic British humor, courtesy of the hit comedy sketch show on the BBC: Little Britain

I absolutely LOVE this skit and thanks to YouTube, I can get my Lou and Andy fill anytime I want 🙂

Just to show you how great it is, check out my favorite Lou and Andy episode: Lou brings his friend Andy to the swimming pool…

– Tiff

Whaa? You Can’t Walk? Whatcha Talkin’ About Willis?

Ever have that WTF moment (especially when you first wake up), where you simply can’t believe you’re in a wheelchair? It’s been 14 years since my accident, and I’ve been getting that feeling more and more lately…

It’s annoying and surreal. Just when you think you’ve gotten used to your condition, there goes your brain again, screwing up your coveted peace of mind.

Why in the hell is this happening to me so late in the game?? Anyone, anyone? Somebody help a sister!

– Tiff

Falling Out Of Your Wheelchair Never Gets Easy

How many times have you fallen out of your chair? In my 14 years of paralyzedville, I believe it’s been about 12 times or so, I can vivdly remember each time. I remember because it’s embarrassing. I remember because it hurts! And I remember because it’s a brutal reminder of how much I *really* depend on my chair. And I REALLY don’t like the latter part. It also doesn’t help that I can’t get back in it without help.

As I wheel around each day, working, visiting friends, going out, doing my day-to-day mundane activities, I forget how much I really rely on my chair. I forget I’m even using one sometimes, at the height of my business (I really love when this part happens). But then of course that’s usually when I roll by a mirrored-wall and see my reflection, getting reminded just how disabled I really look to the public. It’s crazy and very much an out of body experience.

One of the first times I fell out of my chair was in the middle of winter. I had an old conversion van with a lift, which my brother was operating. He was impatient, thought I had already rolled off the lift, and started bringing it back up, in the process flipping my chair over, with me getting a nice face full of snow. Oh the memories. My front caster wheels had been off the lift, but not my back wheels, hence why I flipped. I sometimes still wonder if my brother feels any regret from the day.

Another time I fell out was during my college days. I was walking with Mike, my blind friend, down the street one day in the middle of summer. I had taken some painkillers earlier on in the day due to a recent surgery I had and, “Whammy!” I got all dizzy suddenly, lost my already horrid balance, and fell out. And why o why does it always seems like I’m in slow-motion everytime this happens? Just another weird thing about chair life I guess.

I’ve been lucky. Out of all the times I’ve fallen out, at least someone was nearby to help. Can you imagine how scary it’d be to fall out and be all alone? I don’t even want to imagine.

Whatever You Do, Don’t Condescend Me When I’m Sleep Deprived

Over the weekend, I experienced an agonizing, two nights in a row nightmare of an insomnia attack. It was horrid. I used to be like this as a kid, but thankfully, as I grew up, I grew out of it; until recently that is. I know the recent family stress that I’ve been going through is the likely culprit, but after I found a solution to my family drama just last week, I thought I’d be on the road to blissful peace within my soul (are you liking the melodrama?).

So last Sunday I woke up with this nasty Unisom hangover, sleep-deprived condition that probably made me the bitchiest person in Minneapolis that day. And that was the day I was scheduled to see the “Pompeii” exhibit at the Minnesota Science Museum with my friend Nicholas, and a group of people from his Unitarian church (they were really cool by the way…thinking about going). I was determined to not let Mr. Sandman’s hiatus from my life ruin my weekend plans (and I’ve been itching to see the “Pompeii” exhibit for weeks), so I went and picked-up Nicholas, so we could head on over to St. Paul to the museum (after downing a coffee and Red Bull, of course).

We saw the exhibit. It was pretty cool, but I could feel my caffeine-high wearing off. “Needs more coffee!” my zombie brain screamed at my consciousness. So off I went to the coffee shop down in the lobby. As I waited for the elevator to get down there, the worst thing that could’ve happened to me at that moment, did: I was getting crabbier by the second, my whole body (even my cheek muscles!) ached like crazy, and I was annoyed by every person walking by me….so of course, in comes an old lady – right-up in my face – saying the most condescending thing to me ever, in the most condescending tone EVER: “How are YOU today?” she asks me at 10 decibels louder than needed, as if I were deaf or something. I was set-off. I looked at her like I were Lucifer himself and asked her as rudely as possible, “Why are you talking to me like that??” I demanded of her.

*silence* 

She then mumbled something incoherently and the elevator door opened just then. Save me Jebus! I quickly got inside and went down to the coffee shop, ordering a latte with an extra shot of espresso for good measure.

Lesson learned? Don’t leave the house when sleep deprived. 

Subways have no mercy on us gimps!

So be careful, all of you city-dwelling, wheelchair-usin’, subway-riders out there….or else this awful thing could happen to YOU!

Fresh from the New York Post: Subway Clips Wheelchair-User in NYC

She’s alive (she’s some 50-something lady, disability not yet released), but has serious head injuries.

And as we all know head injuries = MAJOR owies. Usually, unhealable owies too.

Poor thing. What a way to go.

– Tiff

The Nuances of Parking a Wheelchair Accessible Van

I’m a complete C6 quad who drives from her power wheelchair. My wheels? Well, it’s a 2006 Dodge Grand Caravan (in a sexy silver), with a Braun Entervan lowered-floor system. The driver’s seat is not there, but don’t freak. It’s supposed to be that way. Instead, I pull up behind the wheel in my chair, with the underside of my wheelchair automatically locking into the floor as I pull up all and snuggly near the wheel (thanks to my handy EZ-Lock lock-down system). It’s a great set-up. And to operate the gas and brake? Well, my van’s outfitted with pneumatic hand controls (“air-powered,” via a tiny motor located behind the back seat that fills up the lines with air). We live in an amazing age, folks. The technology available to us gimps allows us to do things people 100 years ago would gawk at in complete shock.

But it isn’t always peachy-keen in the driving world for me. I can’t even begin to tell you how many times I’ve parked in a “van accessible” spot only to be blocked in by some oblivious, selfish American who is only aware of any living and breathing thing that’s in a 1 foot radius of them. It’s ridiculous. And I have a huge 6″x6″ sticker on the side of my van where the ramp is, just to let people parking next to me know that I need AT LEAST a 6 foot span between my car and theirs, in order to get in and out of my van without. I even know one paraplegic woman who’s devised an orange cones with strings device, that she puts up every time she parks, just to make sure the other idiots bumbling through the parking lot can blatantly see that she needs “this specific area” to remain unblocked.

Even this method though isn’t fool-proof though. There are still some selfish bastards out there that will not hesitate to put their car in park, hop out and move that poor lady’s orange cone blockade, then hop back in their car and park right alongside her van. And do you think they are even aware of why she erected those cones? Of course not. This type of selfish denizen has no time to waste pondering why people do what they do; and especially not the disabled people of this world. We’re the very last on their list of people they’d give a care about.  

So here’s what Miss Tiff has developed during her years of being a disabled driver: Park sideways!! Yes oh yes my friends, I’m that loathsome jerk parked in the back of the lot, not only parked at an angle, but purposely taking up two spots on purpose. Cause really, what other choice do I have? When I’m out driving, 95% of the time I’m alone and have no able-bodied person with me who will be able to back-up my van if I end up getting blocked in and unable to access my ramp. I just can’t take the risk.  

I simply have no choice: I have to be the jerkwad who double parks. The “van accessible” spots rarely prove sufficient.  

My Goddess? Freya, if you please…

Ok, so I’m really an Agnostic to be truthful (The “I don’t care, yet I have morals; and don’t necessarily rule out the possibility of God existing” Religion), but sometimes – yes – I like to delve into the realm of Goddess-based religions (mainly out of my Femi-Nazi streak).

So, during my self-absorbed Pagan studies, looksee what I came across while searching for some frelling cool Goddesses to admire:

Freya – Goddess of Love and Beauty

Now, why is she so perfectly cool for the wheelchair-using ladies of this world?

Why, she uses a chariot of course!

Now if you ask me, any Goddess who permanently resides her arse on a wheeled-transport device of any kind, is my kind of Goddess.

“Freya or Frayja, the goddess of Love and Beauty, also; fertility, war, and wealth. The daughter of Njord, and the sister of Frey. Her daughter, by her husband, Od, is named Hnoss, who it is said: “Is so beautiful that whatever is valuable and lovely is named treasure after her….

Norse legend tells of Freya, whose chariot was pulled by two black cats. Some versions of the tale claim they became swift black horses, possessed by the Devil. After serving Freya for 7 years, the cats were rewarded by being turned into witches, disguised as black cats. The cats also played around her ankles as a symbol of her domesticity.”

Freya definitely gets my Brownie Points for “Cool Shite o’ the Day.”

And out of curiosity:  Who would you worship if you had to pick an inanimate object?

– Tiff

How I Handle Rude Questions Regarding My Disability

It’s not uncommon for me to be subjected to a variety of openly rude and sometimes idiotic questions, thanks to my more than visible disability. I live in the downtown area of a major metropolitan city and there is a wide array of “crazies” that litter my ‘hood. Some are your common drunkards, some are your “ghetto fabulous” wanna-be gang bangers who have a thing for blondes (wheelchair or no), some are your recent immigrants from Somalia, India, or Mexico and have never in their lives seen an attractive and seemingly “healthy” (then “why does she need a wheelchair?” they confusingly think to themselves) woman needing to use a wheelchair. All of these people, and even your mildly-educated suburbanite will accost me with inquiring questions, blatantly, as I meander my way down the street.

And I gotta admit something: I’m damn sick and tired of it. I believe there comes a time in every disabled person’s life when they reach a limit, a peak if you will, to how much they can handle when it comes to rude questions regarding their disability. And when they’ve reached their arbitrary “limit,” things start to get a bit crazy. You just don’t know what they’re gonna do or say the next time some idiot comes up to them with a rude question that they’ve probably already heard 678 times in their life.

I’m pretty sure I reached my limit a few years ago. It first noticed I finally had had enough, and couldn’t just answer politely anymore like I had been, when I was at my neighborhood gas station grabbing a few things during a midday junk-food binge. An overweight white dude wearing a too-small dirty white tee shirt (with his gut half-way hanging out), came up to me and asked me, point blank, “So what’s wrong with YOU?” I had had enough right there. I don’t know if I finally by the grace of God had accrued some kind of Hulk-like self-confidence, but I had the balls to reply to him – without hitting a miss – “Absolutely nothing. I’m just lazy and don’t like walking. What the F*** is wrong with you?!” I answered back; looking back at him dead in the eyes. It was so awesome. I felt like some super hero and something, and was ready to knock down the nearby stacked pile of Coke cases, just to show him he had messed with the wrong gimp.

Now to be fair, I want to say I fully realize that a lot of able-bodied people don’t MEAN to be rude, impolite, etc. “They just can’t help being inquisitive,” my family (and friends) remind me. But why is it that able-bodied folks feel it’s totally ok to ignore the usual social graces of politeness? I mean, I can’t go up to a lady that’s clearly 200lbs overweight and ask her what happened to her emotionally that she let herself get to that point? Or, I most definitely can’t go up to a guy who’s wearing a totally outdated suit and ask him why his fashion-sense is severely lacking? No. It’s considered totally rude and no one ever does it. But with the disabled, it’s a no-license-required, free for all shootout barrage of questions.

I’ve been asked and told everything from, “What’s wrong with you?” to “You’re too pretty to be in a wheelchair,” to “Do you need help?” (when I’m just sitting by a bench using my cell; apparently I look helpless 24/7), to “Slow down there, young lady. You might get a speeding ticket!” (which they laugh at for a minute or so, because they seriously think they’re the first person to think of that joke), to the classic, “Oh you poor thing.”

I’m extremely pleased with myself that I’ve gotten to the point in my “disability experience” that I can now combat openly rude questions in a fast and witty manner, usually knocking the unsuspecting idiot from their train of thought, giving me just enough time to zip away from them before they have time to assimilate any follow-up questions.

Word of the Day! “Gallows-Humor”

And yes, we SCI’ers and other people with mild to severe disabilities are totally cleared to use it!

Definition: Gallows humor is a type of humor that arises from stressful, traumatic or life-threatening situations such as accidents, wartime events, natural disasters; often in circumstances where death is perceived as impending and unavoidable. It is similar to black comedy but differs in that it is made by the person affected.”

http://en.wikipedia.org/wiki/Gallows_humor

 Go ahead, make fun of yourself! It’ll make you feel better I swear!

– Tiff

The Saga of Finding an Accessible ATM, i.e, “I Need My Money!”

I’m lucky. I live in downtown Minneapolis, which means I’m in “walking” distance of literally DOZENS of ATM machines. But the kicker? It seems as of late that finding one that is a) wheelchair accessible and C6 quad friendly (i.e., no swiper thingy please!), and b) accepts my type of card, is becoming more and more of a challenge. It’d ridiculous really. Let me give you some quick insight into what’s been happening so you can better understand my ATM-situation (btw, in the picture to the left…the dude pictured is NOT me). I used to visit this awesome, cutsey lowered-ATM machine that was located about 4 blocks from me. Getting to it was a cinch. You see, since the city I live in is all interconnected by skyways (they were constructed due to the long cold winters; but the winters are now not so horrible anymore, due to global warming. *shrug* Waddya do?). After a quick 2 block jaunt, I’m in the “system” so to speak; zooming through the skyways at my top speed (which is 6 mph I believe. I’ve never clocked it though). And soon, I arrived at the Wells Fargo, totally wheelchair-accessible, ATM machine. It was even situated right next to this awesome shoe shine-place owned by a Hurricane Katrina evacuee, who played the grooviest Zydeco music ever, blaring it at Corporate America drones as they passed by during their lunch breaks; but that’s another story altogether. But about a month ago, it was a “no go” situation. The machine spat out my card like a piece of pork gone bad, telling me that Wells no longer accepted my card. “Wtf?” I thought. I pondered; exasperated, and decided to move onto the next accessible ATM machine I knew existed in the “system.” The next machine was also a Wells ATM, but I tried it anyways. “Maybe the other machine was a fluke?” But no. Rejected again. Off again I was, zooming, unrelenting in my search. When a girl needs some cash, she REALLY needs some cash. Success was finally had at a totally NON-accessible Wells ATM machine, located a further 5 blocks inwards towards the downtown zone; a truly annoying thing. If it wasn’t for my chair’s elevator seat and a kind stranger who pulled my card and cash out for me (a really scary thing to ask a stranger for help with, btw), I would’ve been totally screwed. I hate how my disability makes the seemingly easiest things so complicated. No fair 🙁