You Are Still You

While working for my main gig nowdays at SPINALpedia.com, I came across this amazing lady is known as the Pretty Cripple. She is a beauty blogger from New York City and her style is crazy unique. I love it! I would say it’s “retro wheelchair fierce” and yes, she wins at life.

Check out her blog: Pretty Cripple

Ps. How are you doing? Have any crazy wheelchair stories to tell

– Tiffiny

SCI Superstar: Jordan Bone

Beauty comes in many forms and Jordan Bone, a C6 quad from Norfolk, UK, may be one of the best examples of this age old adage. Injured 10 years ago in a freak car accident when she was just 15, Jordan has gone on to become one of YouTube’s rising makeup vloggers, and 2014 has been her year.

From being honored by the UK’s Prime Minister for her tireless work in road safety to being interviewed by some of UK’s top makeup artists, Jordan’s fame is skyrocketing. A popular motivational speaker for the Fixers organization as well, who knows what the future holds for this dynamic lady.

To see how a woman can pull herself out of depression with just a camera, high quality makeup and an eager audience, read on for the awesome story of Jordan Bone. Read this entry

Stunner on Wheels: Alexandra Santibanez, Paralyzed Miami Fashion Model

They say getting injured at a younger age makes it easier transition-wise, and Alexandra Santibanez certainly proves this is the case. A fashion model hailing from Miami, Florida and a motivational speaker and advocate for disability awareness, her injury at the age of five has barely slowed her down.

But what we especially love about Alexandra is her sense of style. Not only is she a model, but she went on to receive her bachelor’s in a field perfectly suited for the fashion industry, making sure she’s armed and ready for the future.

Brilliantly smart and the most fashionable woman on four wheels in South Florida, this is the outstanding story of Alexandra Santibanez. Read this entry

SCI Superstar: Marc de Hond

The “Ryan Seacrest” of Amsterdam, Marc de Hond is a well known TV personality and presenter who started out his media career as a DJ, but he wasn’t always paralyzed. A tumor on his spinal cord had different plans, and it changed his entire life when he was 25 years old.

But what’s glorious is how Marc threw himself back into life after rehab, especially since his rehabilitation stay was longer than most due to his incomplete injury, and he soon realized his wheelchair was a better form of transportation vs. desperately trying to walk, and it was in this moment he reclaimed his life.

Read on to see what Marc has been up to since his injury. Read this entry

IZ Adaptive Designs to be Showcased in Museum Exhibit

Now this is something I can guarantee you’ve never seen at any museum before. Debuting this Saturday at the Royal Ontario Museum,  also known as the ROM, Canada’s largest natural history museum, is a textile exhibit sure to impress any wheelchair-user, or anyone interested in fashion created for the seated form.

Called Fashion Follows Form: Designs for Sitting, this exhibit showcases the brilliant designs of Izzy Camilleri and her line IZ Adaptive, which were all created with wheelchair-users in mind. But it’s not just showcasing her designs and no one else’s. The exhibit also will be showcasing designs from the 18th and 19th century that were also created for the seated form.

This part is pretty cool considering how difficult it is to preserve textiles from even 100 years ago. I absolutely love antique clothing for this very reason. To get into specifics on the new garment side, Izzy will be showing 12 of her looks, including her leather jacket that splits into two with a vertical zipper for easy access, a trench coat with the shorter back (my all-time fave) and her gorgeous wheelchair-friendly wedding dress.

And there will be 6 antique textile pieces shown alongside IZ’s garments. A few of these include a dolman created to accommodate a large bustle, 18th century breeches and a 19th century side-saddle riding habit. All of IZ’s garments will also be shown on standing mannequins to demonstrate why the designs work so well for sitting.

Also, 12 of Izzy’s iconic designs, garments she’s made for film, will also be on display, including her silver fox coat worn by Meryl Streep in The Devil Wears Prada.

Fashion Follows Form debuts this Saturday, June 21, 2014 at the ROM and will run through January 25th, 2015. And even cooler – if you can’t make it in person, the exhibit will also be online. I’m so glad an exhibit like this is happening. It will give a huge slice of the population insight into a world, a textile issue, they’ve never thought of before.

And if you’ve never gone to the ROM, definitely consider going in you’re in the Toronto area. It has won several accessibility awards and has dozens of fascinating exhibits. You won’t regret it.

Will you go to Fashion Follows Form: Designs for Sitting?

– Learn more: Fashion Follows Form: Designs for Sitting

– Izzy Camilleri’s online clothing store: IZ Adaptive

Excited to Share IZ Adaptive’s Revamped Site & Inventory

IZ Adaptive has been an award-winning adaptive clothing line for the seated body since 2009, spearheaded by renowned Canadian fashion designer Izzy Camilleri. Izzy intimately knows the world of fashion, and know that change is always a good thing, which is why she’s revamped her website & inventory.

I couldn’t be more excited either. Prints are one of the biggest changes you’ll notice in her collection, with leopard print and floral prints now available with their adorable Capri pants and Women’s blazers. They’ve also added a “Dressing Easy” category that exclusively contains some really cool items to help you dress easier.

The items they’ve included will delight anyone interested in clothing construction. You’ll find their super smart Open Back Sweater, that has an open back with snaps, their Solid Magnet Shirt with easy magnet closures and their Tear Away Pant, which has snap closures on the outside of each leg.

IZ Adptive’s Men’s area has also been given a refresher. Not only will you find a bigger selection of everything from shirts and jackets (these are also available in new prints like camouflage) to increased athletic wear options, they now have male models modeling their clothing.

They’ve hired several new female models too, all real-life IZ users, who you will see throughout their online catalog, and each representing an unique ability. IZ is showing real-life users in real-life situations in their images and it couldn’t be more awesome.

Above all, IZ Adaptive clothes are meant to help you feel better about yourself. From their shop in downtown Toronto, they’re always thinking of the next great garment for people who use wheelchairs and they eagerly and gladly welcome any garment ideas and suggestions, which is so great.

So if you have any kind of light bulb of inspiration, even an inkling, make sure to email it to info@izadaptive.com. They are open to as many suggestions as they can get.

– Visit the site: IZ Adaptive

– Be sure to check out IZ’s new Vimeo Channel, with interviews of real-life clients: IZ Adaptive on Vimeo

SCI Superstar: Dr. Danielle Sheypuk

Growing up in Scranton, Pennsylvania, Dr. Danielle Sheypuk, the now self-described “Carrie Bradshaw” of women who use wheelchairs, was just like any other girl – she loved playing with her Barbie dolls and she dreamed of growing up to be a beautiful woman with a doting husband – but she was also a wheelchair-user.

At the age of 3, Danielle’s Spinal Muscular Atrophy progressed to the point where she could no longer walk, and since, she’s been a full-time wheelchair-user. Danielle is without question an expert at living life fabulously sitting down, especially when it comes to dating and sexuality.

A clinical psychologist for people with disabilities on dating and sexuality, Ms. Wheelchair New York 2012 and a model in the upcoming revamped Raw Beauty campaign by The Christopher & Dana Reeve Foundation, read on for the truly awesome story of Dr. Danielle Sheypuk. Read this entry

SCI Superstar: Jessica Kruger

At only 21 years old, Jessica Kruger from Vancouver, Canada has already put a huge dent in her mission to change the way the world perceives beauty. Last year she put her hat in the ring for a nationwide modeling contest in Canada sponsored by Lise Watier, and she totally won.

Since winning, this college student and quad rugby player has been all over the news sharing her story and spreading the message that beauty can come in all forms.

Get ready to be inspired by a woman dedicated to a higher mission that, as always, can be helped by a dress and a pair of Steve Madden heels. Read this entry

SCI Superstar: Chelsea Rae Huggins

A woman of remarkable beauty, Chelsea Rae Huggins is the ultimate meaning of keep on keeping on. Once a rising makeup artist who went on to transform her love of painting faces into painting on the canvas, she truly understands the importance of beauty.

There’s power in beauty and in art, and the art Chelsea Rae (also known as SPINALpedia member raehuggins) has created has garnered her a huge following on Facebook. Her purpose in life is without question to help share beauty with the world.

A southern girl with big dreams, read on for the transformative story of Chelsea Rae Huggins. Read this entry

SCI Superstar: Angela Irick

It takes a lot of gusto to step out in the world the way Angela Irick has. A C1-2 quadriplegic since 1996, she’s been bound and determined not to let her paralysis hold her back from her dreams. While it’s certainly not easy navigating the world with an injury as high as hers, that hasn’t stopped her.

As the founder of Heels with Wheels, an online fashion store for women with disabilities and a dedicated committee member for Ms. Wheelchair Texas, Angela is staying true to what she loves. Read on for Angela Irick’s awesome story of moving on and doing it with style. Read this entry